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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)
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@norseman44

Can you share the names of the steroid creams that appear to work for you.
Others may appreciate knowing

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Replies to "Can you share the names of the steroid creams that appear to work for you. Others..."
shari715 | @shari715 | Jun 27 10:09am

I am not using any steroids or any other ointment. I use a UV light box three times a week.

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devincito69 | @devincito69 | Jun 27 7:00pm

I was diagnosed with CTCL in March 2023. We started treating with Valchlor gel (special order/cold storage) and then moved onto Clobetasol 0.05% and I used a at-home UV light daily for 1-2 minutes on the white patches. Now, the CTCL has moved to my blood and am taking 4x75mg Bexarotone (Targretin; a chemo pill) for a total of 300mg a day plus 2 pills to manage hypothyroidism and triglycerides. a long slog so far, with one huge patch (the size of my palm) which Valchlor did a good job at attacking.

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