Connect
← Return to Peripheral Neuropathy vs. Erythromelalgia
Discussion
Peripheral Neuropathy vs. Erythromelalgia
Autoimmune Diseases | Last Active: Mar 11 4:08pm | Replies (57)Comment receiving replies
Hello, I would love to know where you got cold socks???Please I must find these...
I too have Raynaulds and it starts when ever there is a temperature change of just a few degrees .When I walk down the refrigerator aisle of the food store even if it is 68 degrees and my body was in a 74 degree area before that...After that I get Raynaulds my fingers turn white and get numb and cold....I then develop EM several hours later or the next day. First it starts with a bad headache then I know EM is on the way. My fingers and tops of hands get red itchy and very hot.My toes and bottom of feet get beet red and hot and burning. The headache and EM usually last about 3 to 4 days. Doctors at Stanford told me it a thermostat problem with the brain cooling down(Raynaulds) and heating up( EM) hands and feet( and some people face) Wearing sneakers and walking causes the feet to get hot and starts EM flare ups too. I stay away from MSG and salt and spicy foods, all alcohol, but still present with same problems but not as bad.My twin brother also has EM.I also have Ehlers Danlos which also is an auto immune disease... Lots of people who have one autoimmune disease also have several. I also have peripheral neuropathy in my feet and toes caused by the EM and circulation problem. I am 73 years old and thin and otherwise in good health other than these issues.
Please tell me where you got the cold socks. I live in Northern California ( SF bay area)where temperature is mild all year long. Could never live in very cold or very hot weather... ellen
Replies to "Hello, I would love to know where you got cold socks???Please I must find these... I..."
Amazon sells the booties to cool your feet...........
I bought them several years back but when I moved house they were left behind in the freezer! I bought them when I was in California while taking care of my very ill son.. the heat there was unbearable for me! They made a huge difference.. Now I'm back in Oregon and barefoot when at home.
Also I cannot bear to wear socks except in bed at night. That's when my feet feel like they are freezing..
Neuropathy and numbness have taken over my feet nowdays.. I can walk again!
Wish I could remember the name of those booties and I hope Amazon still sells them.. Do want to mention another item they sell that I cannot do without though.. Neuropathy Frankencense and Myrrh oil.. comes in a small bottle with an eyedropper. Inexpensive and immediately begins to ease the hot burning pain when my EM flares. A nurse for diabetes told me about it and I am forever grateful for the suggestion.. I am not diabetic!
I feel your pain and frustration with this.. My age is 82 and I have lived with this for many years.. Not fun at all.
Connect
I prefer the soft socks sold at Dollar Tree only in winter
weave non irritating. No recall of sock fabric or name of manufacturer Also socks may have elastic I have no allergies or reaction
Do have same shoe issues with hard crease on feet
Can only wear sandals with my socks all year .
Have SCS pain relief device that makes almost all day free from sharp burning feet But still have intermittent night breakthrus. Sleep unpredictable since RLS and foot neuro seem to trigger each other. Patch of rotigotine mostly prevents RLS all day But night Neuro pain can trigger it and vice versa.