Gastroparesis with severe symptoms!

I was finally diagnosed 2 months ago thanks to the PAC in the gastro office who truly believed we would figure it out and listened. One visit I guess I put it together without realizing…..I told her I’m so nauseas all the time and never hungry but force to eat. I can only eat a small amount and within no time my stomach bloats like I’m pregnant and also gets distended. I have pain all the time because I have IBS-C. She looked at me and said you just probably solved the puzzle. Let’s do a gastric emptying study and, of course, there it was gastro paresis. Now I’m completed because I’ve had depression and anxiety most of my life but managed very well with therapy and medication. However, these meds mixed with gastroparesis meds to puts me at high risk for other permanent issues plus I already have a neurogenic bladder that I have to get a stimulator put in because my brain no longer controls it. I also have fibromyalgia for 30 yrs post Lyme disease which was fine and a normal life, same with mental health until about age 50 I started slowing down.
My latest test which is an adventure and I’m trying to think too far into yet……I had a urine test sendout that neuro order which could connect abdominal issues but it came back positive with high level for a rare disease. They just did DNA testing, more urine and blood all send outs. So I’ll have to update but it could all somehow be connected!! I am in chronic abdominal and intestinal and back pain then add my fibro. I get the heart palpitations, ears ringing. Chest/heartburn, vomiting but mostly regurgitated Nausea 24/7
So that’s my long story over last 4 months. I actually hanging in well because I’m a pretty positive I can do this and make it all work personality. I’m basically a happy person.
Oh and I’m getting to Univ of PA Hosp Gastro Motility. They have so much more they can do and offer besides medicine and painkillers.

I have gastroparesis. I learned from Dr Anne Oaklander it is the first sign of neuropathy. You need to see a neuromuscular neurologist and have an EMG/nerve conduction test done along with a punch biopsy for small fiber neuropathy. I was diagnosed with gastroparesis way before the neuropathy and my neurologist never did any further testing. I had gastroparesis before I was diagnosed with neuropathy.
Also, don’t eat red meat. It’s harder for your stomach to digest and it sits on my stomach for a couple of days. It increases my nausea and sometimes I throw it right back up because it’s so heavy. Everyone is different you might be able to tolerate it.
https://my.clevelandclinic.org/-/scassets/files/org/digestive/gastroparesis-clinic/diet-for-gastroparesis.pdf?la=en

Thank you, Mayo Clinic Community, for sharing your information. I am relieved that "It's just not me".
DJJG1959

After undergoing hiatal hernia surgery, I lost 10 pounds and had extensive diagnostic testing to determine my problem. I was diagnosed with gastroparesis without a stomach emptying test and prescribed Creon enzymes, off-label. I have gained weight, but my A1C has risen, probably because the gastroparesis diet includes white bread, white rice, a little fiber, and limited amounts of raw fruits and vegetables. My gastroenterologist offers no options.

The problem with Gastroparesis is how rapidly you lose the weight. I lost 30 lbs on 5 weeks. And when I am really in a bad flare, 15 lbs in two. And I am small to begin with. The worst problem with the disease is the malnutrition and dehydration problems. So much is effected. I was getting extreme back spasms and thought I hurt myself, NY chiropractor knew right away it was from being depleted of nutrition. Gastroparesis is a disease that you have to be very conscious about your diet, exercise is extremely important, pedialyte is very helpful, and whatever supplements work for you. It can be managed and your levels will be good but it's kind of a lot of work. Logging things, strict scheduling. And getting the right treatment and medication.

I am fighting with this ever since hiatal hernia surgery in which, apparently, my vagus nerve was damaged. The shoulder pain has just started and seems to be very much associated with times when I am having stomach discomfort or pain. I feel best when I eat nothing at all but that’s not sustainable of course. It looks as though a nearly liquid diet will be the way I need to go. I’ve had all the tests and no answers except “low motility” and managing through eating. I get hungry but don’t like the consequences of eating. I am not taking any medication related to this except omeprazole. Anyone having success with meds?

No yet I certainly can understand what you are going though. I am on a mostly liguid diet also. It’s very hard and difficult to want to eat something different yet be so afraid of side effects if you do. Very uncomfortable!! So sorry!

Gastroparsis is the start of neuropathy according to my neurologist.
https://www.niddk.nih.gov/health-information/diabetes/overview/preventing-problems/nerve-damage-diabetic-neuropathies/autonomic-neuropathy#:~:text=Autonomic%20neuropathy%20may%20also%20cause,to%20manage%20your%20blood%20glucose.

I have had gastroparsis for over 10 years. When I have the most problems I put my food through a food processor. The food processor gets it like baby food.

I saw a gastroenterologist for this similar condition. She put me on Motegrity. It works in different ways for different people. Caution, it can cause uncontrollable diarrhea.