Wow, you had to go through a lot to get diagnosed! For a few years now, my local (and excellent) neurologist has thought I had MG, but he insisted I go to Mayo Clinic to be tested. I finally was able to go about 3 weeks ago now, and was totally surprised that I have PD. The blood tests, and several other tests, especially the EMG ruled out MG. When I got home, my neurologist was surprised at the PD diagnosis, but the Mayo doctor saw symptoms I didn't know I have, which were a slight movement in my head, pill-rolling, and not swinging my left arm when I walk. What he didn't see was my difficult walking, but as I walked more that day, my legs got stiff and i could barely walk, so my husband put me in a wheelchair so we could get around.
I ask about having both because I am not sure my neurologist is convinved it is PD, but he prescribed Sinemet and I am taking it slowly, adding 1/2 a pill to 3x/day and working up to 1 pill 3x a day. I saw my ophthamologist this week, and he prescribed an update on my prisms in my glasses and will se me again in a few months to see how that goes. He has done corrective surgery on my eyes nefore but it didn't last, which he tould me that if I have MG, it won't last.
I am glad that you have been proactive in seeking help, as I continue to do the same thing.!
Thanks for the very informative reply! Exercise keeps me going, when I have a lot of stiffness, and have trouble walking. I just finished several months of physical therapy, that has helped me to regain a better walking gait! Good luck! I may have PD, but it doesn’t have me, is my attitude every day!