Stopping Evenity Early

Posted by melanie1 @melanie1, Sep 17, 2022

I decided to stop Evenity after seven treatments because I seemed to develop increased symptoms of osteoarthritis in knees and hands while on it, in addition to generalized stiffness and joint pain. Has anyone experienced this or stopped Evenity for other reasons before completing 12 treatments?

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hopefullibrarian | @hopefullibrarian | Jun 23 11:28am

Hi @sbcher, I've never heard of "Frank stage." What is that? Thanks!

hopefullibrarian | @hopefullibrarian | Jun 23 11:31am

In reply to @windyshores "@cat1203 I will try to find it later. There were several permutations of timing with Evenity..." + (show)

@windyshores I hope you are able to find the study. I would love to have a look at it. There just isn't enough research on the subject of what comes next, and the timing.

windyshores | @windyshores | Jun 23 8:59pm

In reply to @sbcher "Yes it did. My starting point 1 year previous T score was -2.4 after Evenity 10..." + (show)

@sbcher what is Frank stage?

ripley | @ripley | Jun 24 10:52am

In reply to @sbcher "Yes it did. My starting point 1 year previous T score was -2.4 after Evenity 10..." + (show)

What did your Dr say about this large change in your DEXA, were any tests done to find out why this happened? It seems like either one of the DEXA's was wrong or something else was going on to cause the decline. Sorry to hear this.

sbcher | @sbcher | Jun 25 8:43am

In reply to @ripley "What did your Dr say about this large change in your DEXA, were any tests done..." + (show)

The doctor didn't say much, except not to fall. You see the first test was done in California, 2nd in AZ. I asked if they could double check the results? I'm supposed to follow up with the DR today after my blood work.

I'm not sure what other test can be done before my next Dexa scan (every 2 years)? Please let me know, as I am learning as I go.

Thanks for your feedback. CJ

ashash | @ashash | Jun 25 8:47am

I just had the 7th Evenity injections. Quite painful hand problems--no wrist--afterwards. Have had this for the last few months--thought it was just arthritis, etcc., which my mother had as well. Now thinking it might be Evenity-related.

barjar | @barjar | Jun 26 7:59am

I had a similar experience with Evenity. I tried it on
Two separate occasions. Both times I really ached
all over.

ripley | @ripley | Jun 29 3:15pm

In reply to @sbcher "The doctor didn't say much, except not to fall. You see the first test was done..." + (show)

Did your Dr do any testing about your bone loss? My Dr had me do a 24 hr urine test which showed high levels of calcium and cortisol. I've read that high cortisol interferes with bone building and pulls calcium from bones. I'm waiting to hear from my Dr about what to do next.