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Any correlation between Essential Thrombocythemia & high B12?

Posted by annetterzam @annetterzam, Jun 24, 2023

I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week. A recent blood test shows abnormally high B12 levels. Anything over 900 is concerned high. My level is 7,500. This level scares me. Everything that I have read on the Internet is not good. Of course I will find out more when I see my Primary Doctor and my Oncology Hematologist. I'm anxiously awaiting for answers.

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sregiani | @sregiani | Jun 25 8:05pm
In reply to @jackiecarey "Has your Hematologist said sticky platelets are the norm? Is you husband on a baby asa..." + (show)
@jackiecarey

Has your Hematologist said sticky platelets are the norm? Is you husband on a baby asa or a blood thinner..I agree not to go onto Dr. Google but there are sites that are very informative..For instance if you go on you tube and search, in your case, ET you'll find MDAnderson, Sloane Kettering, etc hematologist oncologist who specialize in just your specific disease with the caveat always discuss with your Doctor. I was surprised one day on a You tube pod cast to have my Dr. from MDA discussing PV..I believe an educated consumer is a healthy thing however, I don't do anything without first discussing with my Hematologist.

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I’ve had ET w/Jak2 for 18 months. My functional medicine doc works w/my Heme doc (who is chair at our hospital and on an MPN research team).
Yes, my platelets are sticky and a baby aspirin is a first step in keeping them sliding vs sticking. This works for me, as blood draws show every 3 months.
While we gain insight from each other, it is vitally important to run all options thru your own Heme doc. What works for one (or some) is not right for all.
Blessings and best wishes.
Sherry

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