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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: 5 days ago | Replies (217)
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@montsebarcelona

Good morning @becsbuddy,
Well, I've been on MTX for 4 months now and I haven't stopped cortisone since January... and maybe at first I noticed some improvement in the sense that my symptoms were fluctuating but I'm terrible again, I haven't managed to stabilize myself at all... and It's exasperating. The hearing loss goes up and down a little but every month I have more loss and the pressure and tinnitus are horrible... I have been to many ENT specialists, none of them know what else to tell me. I am on the waiting list to get a cochlear implant since I lost my left ear 11 years ago. But the problem of the right ear cannot be solved with anything.
Thank you very much for your support.

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Replies to "Good morning @becsbuddy, Well, I've been on MTX for 4 months now and I haven't stopped..."
ruthblaze | @ruthblaze | 5 days ago

I’ve found that we have to try many modalities to be able to function with this disease. B vitamins have been helpful I found a supplement called lipoflavanoid recommended by my ent years ago although it says for tinnitus it helps with inner ear problems and has been very helpful over the years also I use accupuncture for flare ups. The doctors are clueless after using prednisone they have nothing else

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