Thank you so much for all the information. I feel better already. I was diagnosed with low risk MDS 8 yrs ago. A wait and see. Low platelets were my problem. I was put in steroids for pneumonia and my platelets came back to normal. I had a total hip replacement last year which went very well but ended up with fractures in my thoracic spine which led to a diagnosis of osteopenia. Taking injections for that. I have had problems with shortness of breath and sweating at night for a few years. Then my white cell count suddenly rose to 43. My hematologist did 2 bone marrow biopsies because the first one the biopsy wasn’t enough
She thinks snd came back negative. The second one she eas pleased with and sent the biopsy to the Jewish General hospital and The Glen. Two top hospitals in Montreal. Two weeks later she called me with my diagnosis. It was over the phone and I took in what I could. She said the hematology board of doctors would be meeting Thursday to discuss my case. She wanted to start me on hydroxy but it is a long weekend here so I guess I will start Tuesday. She also
Talked about Chemo treatments but not like the chemo I took 17 yrs ago for Breast cancer. It is an injection under the skin for 7 days I think. I will know more this week. Also the fatigue I have off and on. It just comes on usually at the end of the day. I lay down for about 15 min and then I get up and I am ok again. Have to take breaks when doing housework. lol.