1. < Polymyalgia Rheumatica (PMR)

Additional Resources for PMR/GCA

Posted by tillysam @tillysam, Nov 16, 2022

Healthunlocked.com. An excellent forum for PMR and GCA.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

nancy53 | @nancy53 | Jun 24 8:08am
In reply to @johnbishop "Thought you all might be interested in these webinars for PMRGCAuk week 2024 -- Improving outcomes..." + (show)
@johnbishop

Thought you all might be interested in these webinars for PMRGCAuk week 2024
-- Improving outcomes through exercise and activity by Will Gregory, Consultant Physiotherapist and Clinical Lead of Rheumatology at Salford Royal Hospital and BSR Vice President
-- A bit of both? Hidden complexities in PMR and GCA - Dr Sarah Mackie
https://pmrgca.org.uk/pmrgcauk-week-webinars/

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Thank you for the link. I've always felt the UK, Australia, and New Zealand have done more research than we have here in the US.

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1 reply
leeta | @leetaanderson | Jun 24 9:08am
In reply to @johnbishop "Thought you all might be interested in these webinars for PMRGCAuk week 2024 -- Improving outcomes..." + (show)
@johnbishop

Thought you all might be interested in these webinars for PMRGCAuk week 2024
-- Improving outcomes through exercise and activity by Will Gregory, Consultant Physiotherapist and Clinical Lead of Rheumatology at Salford Royal Hospital and BSR Vice President
-- A bit of both? Hidden complexities in PMR and GCA - Dr Sarah Mackie
https://pmrgca.org.uk/pmrgcauk-week-webinars/

Jump to this post

Excellent resource. I especially appreciated the second, as Dr. Mackie provides details about the disease that I haven’t found elsewhere. Thank you!

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DadCue | @dadcue | Jun 24 10:08am
In reply to @nancy53 "Thank you for the link. I've always felt the UK, Australia, and New Zealand have done..." + (show)
@nancy53

Thank you for the link. I've always felt the UK, Australia, and New Zealand have done more research than we have here in the US.

Jump to this post

The research is multinational --- countries have different priorities perhaps but many countries do research and have access to research done worldwide. . There are funding considerations that all countries are subject to.

From what I have read, the research that comes out of Japan is ahead of everyone. For example:
https://pubmed.ncbi.nlm.nih.gov/36881671/
and
https://rmdopen.bmj.com/content/10/1/e003897
-----------------------------------------------------
PMR isn't just a northern European problem or a Minnesota problem.

The USA seems to be leading the way in finding alternatives to Prednisone for the treatment of PMR but my opinion might be biased. This is especially true for the use of biologics for the treatment of PMR.

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1 reply
nancy53 | @nancy53 | Jun 24 3:03pm
In reply to @dadcue "The research is multinational --- countries have different priorities perhaps but many countries do research and..." + (show)
@dadcue

The research is multinational --- countries have different priorities perhaps but many countries do research and have access to research done worldwide. . There are funding considerations that all countries are subject to.

From what I have read, the research that comes out of Japan is ahead of everyone. For example:
https://pubmed.ncbi.nlm.nih.gov/36881671/
and
https://rmdopen.bmj.com/content/10/1/e003897
-----------------------------------------------------
PMR isn't just a northern European problem or a Minnesota problem.

The USA seems to be leading the way in finding alternatives to Prednisone for the treatment of PMR but my opinion might be biased. This is especially true for the use of biologics for the treatment of PMR.

Jump to this post

Interesting. I've always read that PMR's prevalent group (patients) are peopl of Northern European heritage.

REPLY
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