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DiscussionReclast Infusions: Side-effects & Recovery time
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Replies to "I had a Reclast infusion on 4-15-24 and expected flu symptoms but not the pain that..."
I'm glad to see this post. I had a Reclast infusion 1/28/24 and also have had right knee and leg pain for the last couple of months. I've researched to see if this is common but haven't had much success so thank you for sharing. It is also worse at night and after sitting for any length of time. When I stand, it feels like my leg can't initially support me then it gets better after walking. Many years ago I had taken Fosamax for several months then had a similar situation-right leg pain and trouble walking. It didn't last very long after I discontinued it. I took a chance on the Reclast after a worsening DEXA but now don't know if I should take it again next January. I hope to follow this post and see if anyone has insight here.
I'm really sorry this is happening to you. But I know what you are going through. I took Evenity that cause joint pain in my hands. I discontinued it and followed up with Reclast that I had taken before without problems. Not this time. Within 3 days the pain in my right hand had increased and within about 6 weeks it spread to my left. It was only in my hands (predominately my thumb joints) and no other joints. I'm thankful for that.
The best way I dealt with it was Tylenol (500mg) 3 times a day (can't take Advil). I was very careful to keep it at 1500mg/day. I also used voltaren cream; not really sure that helped.
But what you want to know is how long will this last. For me about a year I started to notice that I could squeeze my eye drop bottle and, don't laugh, but I could tuck in my shirt and pull up my pants without pain. Oh, I can open jars, too. There is some other things that come under the TMI designation. I still have discomfort but it is so much better. If I overdo my fingers and wrist will let me know.
You are doing the right things movement is your friend. I would really suggest going to a PT person for at least a couple of times to get some basic exercises and stretches. My PT person gave me some exercises; stretches and strength ones for my hands and wrist. She was part of the specialized PT for hands. I would also ask them about water walking/exercises.
I'm a big advocate of water exercises and water walking. I can do all these on my own. If you have access to a pool I would try water walking for your knees; it helps mine (preexisting condition). The water takes a lot of weight off your knees and allows you to move more easily. You are more buoyant in water. Moving through the water does help strengthen your muscles around your knees and the rest of your body. You don't have to press hard through the water. The water offers a lot of resistance. Work up to it don't go all 'weekend warrior' and do too much. Also moving your arms, gently, through the water should help I would think.
Everyone is different but this helped me. Good luck.