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DiscussionRestless Legs - Any suggestions as seen many doctors and medications
Sleep Health | Last Active: 16 hours ago | Replies (63)Comment receiving replies
Replies to "Thanks for the info and waited to reply as had an appointment with a neurologist couple..."
The magnesium glycerinate per pill is 240 mg ( I believe; I ran out and need to purchase more) one pill wasn't enough, and I doubled it. Then I read 500 mg is the dosage, and began using 4 pills, then determined though another forum I am with, that six pills at 240 ( I can't recall if 240 g was two pills) The pain management doctor recommended magnesium glycerinate, not citrate, as the glycerinate works through your body. Many RLS suffers use glycerinate at well.
I would look into using another neurologist. How dare he abruptly walks out on you, because he wants you to stay on the pregabalin. The defense agonist (DA)of pregabalin is not used today by neurologists due to augmentation, which I suffered as well two years ago. The neurologist I saw had me go off pramipexole due to an increased dosage in one year. It was hell, and I had nothing to counter it. I slowly tampered it down, and lost many nights of sleep. He then prescribed methadone, of which I was set-dead against. I switched to another neurologist who is a good one, only to find out he too prescribed methadone, and knew after research, this is the correct path. I began small, and worked up to 20 mg, too high in my opinion, but it did work, except for the painic attacks. This struck me at any time, airplanes, medical testing, and it was alarming. I tapered down from 20-5 mg over 2-3 months, where I am at currently. I continue to have break-through RLS after the nightly methadone pill, and take a codeine with acetaphemin. I am set to see a sleep specialist with Mayo soon, and curious to see what they say. I have had two sleep studies, one in 2016 and one in 2023.Both inconclusive. I hope the Mayo doesn't prescribe another one. After experiencing RLS for over 25 years, I am doomed for life with this crazy disease, and can operate well the next day with only a few hours of sleep.
I would search for another neurologist. Since arriving at our current location, I have seen four, yet I am not a textbook case, and I am not wild about the methadone. I don't know what else is out there, as I have exhausted all medications out there for this wicked disease.
Ropinerol completely stopped my RLS. Another drug that worked nearly as well was Sinemet. Before finding these drugs, prescribed by my neurologist, I had taken all the supplements you mentioned and got no relief at all.
I highly recommend these drugs and suggest you see a neurologist for treatment. The problem is in your brain rather than your legs.
Blessings,
Karen