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CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Aug 2 11:42am | Replies (117)

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@pmm

@lucksuen
I am taking a relatively modest dose of Turmeric (1,000 mg daily) for reducing paraprotein levels and bone resorption. I have MGUS and there are mixed results on the effectiveness of taking Turmeric in the literature. So far, there has not been much improvement for me but it has been only 5 months.
My Hem/Onc physician didn’t discourage me, but was not optimistic it would help either.
Since I am also type 2 diabetic with hypertension and Celiac, I do not take anything over the counter without first ensuring that it does not interfere with my prescribed medication, or have possible unintended consequences. So I asked my PCP to arrange for a medication consultation with the pharmacist attached to the department.
While I learn a lot from other Connect members about the medication, supplements and treatments, each of us are different. Even if we share a broad diagnosis, we have different coexisting conditions, subtypes of blood disorders, etc. it demands diligence on our part to do due diligence exploring possible unintended negative consequences. So we can learn about things that may or may not be helpful to us, but we need to get some guidance before we try someone else’s suggestions.
Now having said all that, if I felt that my doctor was dismissive of alternative treatments I would want to know why. Can you ask your doctor why he doesn’t believe supplements will not be helpful. What data has he or she read that helped to formulate that opinion? If you decide to try supplements, will there be unintended negative consequences? If not, will your doctor support a trial to see if your condition improves?

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Replies to "@lucksuen I am taking a relatively modest dose of Turmeric (1,000 mg daily) for reducing paraprotein..."

I'm also taking curcumin capsules, 500 mg each, two a day.
Natural therapies, that's a pretty complex field. Some MDs in our country, including some hematologists, have actually teamed up to do some scientific experiments, looking into whether curcumin, green tea extract, and papaya leaf extract can help alleviate the symptoms of blood diseases.
From what I've dug up, the scientific conclusions they've reached are just limited to specific conditions, particular experimental settings, meaning that when leukemia cells are in a certain environment, using some natural therapies can lead to apoptosis, but these studies haven't been further confirmed in clinical trials.

Why do many doctors at big hospitals look down on natural therapies? I've heard some doctors say this: If the patient isn't short on cash, they can try supplements, vitamins, and all that.
The implication is, they think taking supplements doesn't really help with the treatment outcome, just a waste of some money.

Patty,I think there's no need to be troubled. We're looking for ways to help ourselves. Even if it's not recognized by doctors, even if it doesn't pan out in the end, we've given it a shot.