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Liver transplant with CMV infection

Transplants | Last Active: 3 days ago | Replies (6)

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@preetismiles

Thanks for your reply. I am on tec level 6 -8 and cellcept 500 mg twice a day. I am feeling well and energetic. I am doing a mile walk everyday morning and evening. Can do more walk but going slow as it’s too soon. Waiting for quarterly visit to know more about my health. As per your experience it looks we may need to switch on valcyte when needed. Once it’s stop doesn’t mean it stopped forever. Is it true?

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Replies to "Thanks for your reply. I am on tec level 6 -8 and cellcept 500 mg twice..."

Smiles @preetismiles I’m not really sure what you mean by “tec level 6-8”. Do you mean Tacrolimus and a goal of drug level 6 - 8? No matter. I was just curious.

We were talking about CMV. I think once it is identified in your blood you are considered CMV positive. Many people are and don’t even know it. You can be asymptomatic and it isn’t a problem at all. When you are in a post transplant situation everything is monitored closely (especially at first). One of the reasons for this is being immune suppressed (to prevent rejection) and allowing your system to adjust to the immune suppression. CMV will be monitored in the post transplant labs and Valcyte may be added to your meds from time to time to keep it at an acceptable level.

A story from my own experience. As I said I’m post pancreas transplant going on 19 years. CMV was identified during the pre-transplant evaluation. Valcyte was in the mix of meds post transplant (I think for nearly 6 months). It was eventually discontinued. But sometime during the first few years post transplant the CMV was found to have increased and the Valcyte was restarted temporarily for a time then discontinued again. Eleven years later I was back having a pre-transplant evaluation, this time for kidney. During the pre-transplant evaluation CMV was again detected and again it is low level, not active and I’m asymptomatic still (7-8 years after that). It is just one of the many things that needs to monitored as part of the transplant world.

Hope that explanation and story sheds some light on the CMV topic. Do you trust your transplant team? Hope so and know that they are monitoring things and helping you to care for your precious transplant! If you have further questions or concerns do you have a coordinator you can go to for more information?

You can need to take it again if you have a positive CMV count. But will stop again once it resolves