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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (54)

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@mrsspiker

I’m reading this thread looking for side effects, so far, it looks like there are none? I was prescribed the medication after my stem cell transplant, in case I needed it. They wanted to make sure it was approved before having me start, if needed. I have Kaiser (not sure if it mattered, but it was their highest plan coverage available), and it was approved right away, and because my annual deductible and copayments were met (due to transplant costs), it was at no cost to me. My Drs were shocked that I had it in hand the next week and at no cost.

I had no idea of what that really meant, until reading this thread. Now feeling very blessed and thankful. Also, reading that someone lived to be in their 90’s on it for 20 years, eases my concerns.

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Replies to "I’m reading this thread looking for side effects, so far, it looks like there are none?..."

Hi @mrsspiker. Let me officially welcome you to Connect, though you’ve been a member for a couple of years but have never replied before. I’m happy to see you’ve joined in the conversation. How long ago did you have your stem cell transplant and did you need the Jakafi afterwards?

We have quite a few members in the forum that have had bone marrow transplants for a variety of medical reasons. Would you like to share your story with us? The perfect place for that would be in this link!

~My bone marrow translant story; Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/

I’d love to know more about your transplant. Was this using your own cells or that of a donor? Would you mind sharing what illness had you needing the transplant?