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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (54)

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@loribmt

Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is a hefty monthly price tag. You’ve certainly done your homework in finding some financial relief to lower your out of pocket expenses. Thank you for sharing with others what has worked for you!
That’s what this forum is all about…helping others. I hope you become a regular contributor.

If you’d like to meet other members who also have myelofibrosis this discussion link posted below will be a great place to start. More can be found by typing myelofibrosis in the top search bar.
Here’s the link to just one of many discussions on MF where you can meet, @samlupowitz @jeffrad1 @mga @snakebite and others.
~ Myelofibrosis https://connect.mayoclinic.org/discussion/myelofibrosis-24a025/?commentsorder=newest&pg=3#chv4-comment-stream-headeror.

Thank you again for sharing what has worked for you with your MF. Have you checked out any other discussions?

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Replies to "Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is..."

Yes, I've perused many of the posts. It's truly inspirational to read success stories related to Jakafi. HOWever, the elephant in the room is the ridiculously high cost of the drug. Incyte, the inventor and manufacturer of the drug, is gouging consumers. Not sure what their corporate mission statement is but profiting from patients who find themselves in life-or-death situations, seems indefensible. The term "big pharma" has become ingrained in our culture and frankly leaves a bad taste in my mouth. Just like its counterparts: Big Oil, Big Ag, and Big Tech, Big Pharma holds a monopoly on society and exploits the most vulnerable among us with unchecked economic power and political influence. While I am a capitalist and believe exceptionalism should be rewarded, there are times when profit has replaced consciousness. I've written congressmen/women and encouraged others to do the same. Peace out.