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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (54)
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@jeffmacl

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had a splenectomy in Apr 2024 and still taking Jakafi. I was taking hydroxyurea from Mar 2015 until Oct 2020. The medication helped stabilize platelet and white blood cell counts and decreased my blast count to 1% to 2%. Jakafi will most likely reduce your hemoglobin levels (HGB). My new normal for HGB is 8.0.

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Replies to "I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had..."
Lori, Volunteer Mentor | @loribmt | Jun 22 9:29am

Hi @jeffmacl and welcome to Connect. You’ve had quite a time with your ET and MF. What has the recovery from the splenectomy been like for you? I can imagine with your Hgb hovering around 8, that has to leave you feeling pretty sluggish and tired all the time. Does your hematologist feel the red cell production might increase over time or is this stable now at 8.0?

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