Has anyone in group been diagnosed with monoclonal mastocytosis?
Daughter has been diagnosed with monoclonal mast disease. I understand it’s rare. Anyone else on this or similar journey?
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
@pricejod, there are a number of members talking about mastocytosis in the group https://connect.mayoclinic.org/search/?search=mastocytosis%20
What symptoms led to your daughter's diagnosis? What are the next steps for her?