Has anyone in group been diagnosed with monoclonal mastocytosis?

Posted by pricejod @pricejod, Jun 11 10:24am

Daughter has been diagnosed with monoclonal mast disease. I understand it’s rare. Anyone else on this or similar journey?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@pricejod, there are a number of members talking about mastocytosis in the group https://connect.mayoclinic.org/search/?search=mastocytosis%20

What symptoms led to your daughter's diagnosis? What are the next steps for her?

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