Hi to all of you .... I just caught up with this thread and this disease sounds awful. To have no end in sight would be very discouraging, I would think.
I do plead ignorance, though. Could one of you please tell me .... in "people" terms (not doc.'s terms) just exactly what it is, how it manifests itself, how you got it, is it hereditary, etc.? I feel so sorry for you folks with this, but I would like to know more, right from your own minds and hearts.
Bless you,
Abby