1. < Gynecologic Cancers

What do I need to know about my type of cancer (ovarian)?

Posted by jo72 @jo72, May 30 9:42am

I have Stage 4 ovarian cancer. I had surgery and I’ve gone through chemo but it still left me with several tumors. The surgeon left them because of their difficult location but he thought chemo would get rid of them. It didn’t.

Since joining this group, I’m realizing that people here know so much more about their type of cancer than I do, like “Is it HER2 positive?” or “Is it epithial ovarian cancer?” I feel like both oncologists here in my rural community aren’t very good and because of some very bad experiences with them. I’m going to the cancer center at our nearest large medical center at the end of June.

I don’t know if this is an impossible question, but can anyone tell me what kind of specifics I need to find out about my cancer?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

jo72 | @jo72 | Jun 4 11:51pm
In reply to @lathomasmd "Jo, I’m so sorry you went through that. You’d think an oncologist would know better than..." + (show)
@lathomasmd

Jo, I’m so sorry you went through that. You’d think an oncologist would know better than to say “You’re cured!” to ANY cancer patient! Ever! My mother-in-law had melanoma in her 50s. It came back thirty years later and killed her. The best cancer patients can hope for is “No evidence of disease” (NED). If you are NED for 5 years, then you are considered to be “in remission.”
God, I hope you find a decent oncologist. Keeping my fingers crossed for you.

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Thank you! 🙏🏽 I just found out from a teacher I used to work with that he almost killed a friend of hers. She ended up with permanent medical damage because of it. It’s scary to know that people have something as critical and deadly as cancer and they’re depending on such poor, poor doctors to possibly save their lives.

REPLY
lathomasmd | @lathomasmd | Jun 19 12:26pm

Hello ladies, I just wanted to share the OCRA online conference on ovarian cancer. It’s in late September and costs $50. Bring your questions.
https://register.conference.ocrahope.org/

REPLY
lathomasmd | @lathomasmd | Jul 15 10:29am

Another OCRA online seminar September 19. This one is free. https://freeonlineseminar.ocrahope.org/

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