← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@hollywood50

Hi jess. I am 69 years old. I am pretty sure this was hereditary. I did take genetic testing, To see if we could pinpoint the gene. But they could not pinpoint it. I have two sons one suns bent tested negative for it. My other son has not gone yet. Do you know if yours was genetic?

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Replies to "Hi jess. I am 69 years old. I am pretty sure this was hereditary. I did..."

Yes, HCM is genetic. In 9/2022 I was tested - none of the 123 genes known to cause HCM at that time was mutated. I was told to recheck in about 5 years because new HCM genes may be discovered. Meanwhile, my son and grandson (aged 46 and 12 at the time), did have echocardiograms out of an abundance of caution. My cardiologist advised me to tell them to have that done about every 5 years. Until the genetics are conclusive and we can pinpoint the gene to study, it's a proactive plan. I was in my late 50's/early 60's when I was diagnosed.

Good morning! My dad has HCM and I inherited it, but my brother didn't. My dad has a very mild case, I unfortunately have a severe case and needed Camzyos. I am so very thankful I have my life back, since starting Camzyos in March 2023!