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New definitions of Long COVID

Post-COVID Recovery & COVID-19 | Last Active: Jun 28 11:48am | Replies (21)
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@dloos

Certainly it needs to be recognized.

The one to ten assessment is tough because I might rate something a one or two and another might consider the same disability a ten. I think better to ask how it has changed your ability to function.
Even then, some people might have more ability to “push through” symptoms.

Early on, I was able to continue my life even while being pretty seriously impaired. I can’t do it anymore. My symptoms are worse, but part of it is also exhaustion from dealing with my condition.
After two years for me, I just can’t deal with life anymore.

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Replies to "Certainly it needs to be recognized. The one to ten assessment is tough because I might..."
jeindc | @jeindc | Jun 18 3:50pm

Oh @dloos, yes, discussions about changes in one's ability to function would be good. Would our words be heard? Understood?

Your last line is concerning. Like you, I find dealing with life way too hard and I've "only" done this for 14 months not two years as you have.

If I had magic words or connections or ideas, I'd offer them. With each note to a friend who is visiting where I live that as much as I would like to see them, I fear I'll do what I always do now: say yes, schedule a meal or coffee out and then cancel at the last minute because I just can't expend the energy.

My hope is that in your life, other than us in this group, there is at least someone who is 'there for you.'

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