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hopeinal avatar

Kevzara Side Effects?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 17 2:14pm | Replies (35)

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Profile picture for John, Volunteer Mentor @johnbishop

Hello @hopeinal, I don't have any experience with Kevzara but there are quite a few comments by others on the side effects. Here's a search of Connect with links to comments by others while you wait for members with experience to respond - https://connect.mayoclinic.org/search/comments/.

Here's some information on the side effects if you haven't already seen it:
-- Side Effects of Kevzara: What You Need to Know
https://www.healthline.com/health/drugs/kevzara-side-effects
I'm not on prednisone now but have taken it in the past when my PMR was active. I also have the thin skin that bruises and tears quite easily. Have you discussed the side effects with your doctor?

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Replies to "Hello @hopeinal, I don't have any experience with Kevzara but there are quite a few comments..."

Thanks! Yes I did bring it up to my rheumatologist and he suggested putting me on Kevzara soon. But then he moved to another state so I wasn't able to follow up. The practice he sent his 3000 patients to can't see me until late August or September. However I think my PCP could prescribe it for me.

@johnbishop
My experience with Kevzara. I took my first shot On Tuesday, March 24, then on Friday evening I wasn’t feeling that well and Saturday morning. I wound up in the ER. They admitted me to the hospital when I spent five days and it seemed my blood work went completely off the charts white blood cells count was off the chart on the bottom along with many others. Now I am not saying that it was the Kevzara, But the literature that comes with it tells you about your immune system being attacked and that seems to be what happened to mine. I got acute bronchitis some other type of bacterial infection in my lung and prior to that I was actually feeling pretty good except for my pain from my PMR, which is a constant. I was released from the hospital with oxygen and mainly at this point I’m only using it at night 1.5 L.