Connect
← Return to Anyone have MGUS and being treated for osteoporosis?
Discussion
Anyone have MGUS and being treated for osteoporosis?
Blood Cancers & Disorders | Last Active: Jun 20 3:04pm | Replies (51)Comment receiving replies
I was diagnosed with MGUS in 2015. Low protein level but has increased .1 each year since. I also have osteoporosis in lower spine (L5 area) and mild neuropathy. I had a PET scan (negative for tumors, etc) but my bone marrow biopsy determined I have MGUS. Lamda/Kappa Light chain ratio is high and Kappa Light Chain level is high. I have also been diligent with VitD/VitK and B12, Calcium, along with other needed supplements for 8 years. I consistently exercise (resistance and cardio) 5xWeek, eat very healthy. No seed oils, preservatives, follow the "clean 15 & dirty dozen" recommendation. I figured if my MGUS progresses in the near to late future, I want my body to be as healthy as possibly both physically and mentally.
Replies to "I was diagnosed with MGUS in 2015. Low protein level but has increased .1 each year..."
Connect
Good morning @chawkins.. can I ask how often you have had a bone density scan for osteoporosis and if your protocol of supplements and exercise has halted or improved the osteoporosis. I also have MGUS (altho the only markers affected right now are high IGM and low IGA and IGG-no light chain involvement) and was diagnosed 2 years ago with osteoporosis in my spine. I am super sensitive to medicines and refused prescriptive treatment for the osteoporosis despite the ranting and raving of the rheumatologist. I am 70 years old and have always exercised, take the same supplements you mentioned and have always followed a 70% plant based clean diet so I suspect my lack of estrogen and progesterone (basically NONE at my last blood work a few years ago) is causing the osteoporosis. Any other ladies on the forum started bio-identical hormone therapy this late in life and able to tolerate it without side effects?