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Does anyone else have AML with ddx41 genetic mutation?

Blood Cancers & Disorders | Last Active: Jan 22 10:45am | Replies (14)
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@fortuitous

I Was diagnosed with AMLin southwest michigan 16 months ago then went to the u of chicago for treatment plan and to prepare for stem cell transplant.they found the ddx41 mutation and was sent to mayo to talk with an AML specialist...who strongly advised against the transplant,We saw him again this month and he's reducing my degogen and venclexta medications.Anyone else on this journey?

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Replies to "I Was diagnosed with AMLin southwest michigan 16 months ago then went to the u of..."
Lori, Volunteer Mentor | @loribmt | Dec 10, 2024

Hi @fortuitous, There’s another member in Connect (@sherbs)with the same DDX41 mutation only with MDS, not AML. I just wanted to make sure you saw their message to you. Here’s the link. https://connect.mayoclinic.org/comment/1188060/

How have you been doing since reducing your degogen and venclexta?

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