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Prolia and its side effects.

Osteoporosis & Bone Health | Last Active: Aug 20 10:39pm | Replies (69)

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@beanieone

The input I’ve received here about Prolia trumps the info I did NOT get from my rheumatologist; he just said, “After you’re finished with your (13th dose?? of) Evenity, you’ll start Prolia.”

Not going to do that! Reclast was my stabilizer drug for some years previously and, provided I have not exceeded my lifetime infusion limit, it’ll likely be my future stabilizer.

Thanks to all who have published on this forum - the info may have saved me from a lifetime of Prolia use. I had serious, lasting, side effects from Tymlos - who can say that I wouldn’t have the same or even worse from Prolia after a few injections and not be able to discontinue it. What then, peeps?

Cheers, all!

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Replies to "The input I’ve received here about Prolia trumps the info I did NOT get from my..."

@beanieone Good for you. No doctor should simply proclaim we're doing this drug then that drug with no discussion or patient research/input into their own treatment.

EXACTLY. I have a similar issue. started Prolea 7 years ago without issues and hear the same …it is forever,! IF there were improvements on scans is one thing, but very little improvement on scans,….until now after last 2 injections having severe fatigue and sleeping 11-12 hours a night with some days an afternoon nap thrown in for good measure. I would not have taken Prolea at all but was/ continue to be told it’s the greatest since apple pie and I can never stop! It is NOT ! I want to get off because this fatigue is not the quality of life I desire. Big Pharma again and no recourse! There SHOULD be but too much money being made. Thoughts?