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Anyone have or heard of MDS with 5q-syndrome?
Blood Cancers & Disorders | Last Active: Jun 18, 2024 | Replies (18)Comment receiving replies
I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need transfusions I'm told I'll be started on Revlimid. Can I ask how you feel on this drug and what the side effects have been? I'm always fatigued, but still working. I wonder whether I'll be able to continue.
Replies to "I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need..."
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Sorry, just clarifying. I'm in Australia. Haemoglobin 90 here is same as 9 in US...