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Anyone have or heard of MDS with 5q-syndrome?

Blood Cancers & Disorders | Last Active: Jun 18 10:35am | Replies (18)
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@nbadry

I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need transfusions I'm told I'll be started on Revlimid. Can I ask how you feel on this drug and what the side effects have been? I'm always fatigued, but still working. I wonder whether I'll be able to continue.

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Replies to "I also have MDS del 5q Currently my haemoglobin is sitting around 90. When I need..."
nbadry | @nbadry | Jun 18 6:05am

Sorry, just clarifying. I'm in Australia. Haemoglobin 90 here is same as 9 in US...

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