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@katebw

@rosemarya first I have to express publicly how much I appreciate your kindness and thoughtfulness when we here express our worries. For the two plus years I’ve been involved here I am continually impressed by how you care. As for insurance my team which is MGH in Boston no longer has that council. The HR division of my agency is very helpful but my questions are so specific they cannot answer all of them. I’m looking for experiences about how people coped with health insurance with the need for ongoing medication and the unknowns out there with respect to scanning, other specialized care, etc. were you stressed at any point and how did you cope with that?

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Replies to "@rosemarya first I have to express publicly how much I appreciate your kindness and thoughtfulness when..."

@katebw, I recommend working with your transplant social worker. I recognize the irony of my suggestion since you yourself are a clinical social worker. So perhaps you've already explored this.

As you likely know, transplant social workers help people connect to the resources they need to find practical help, including finances, navigating prescription assistance programs, and insurance questions.

I wonder if there is also useful information for you in this blog post by a Mayo Clinic transplant pharmacist:
- How To Save Money on Your Medications https://connect.mayoclinic.org/blog/transplant/newsfeed-post/how-to-save-money-on-your-medications/

I'm tagging @hello1234 to see if she has any experience to share regarding coverage post transplant or suggestions.

Kate, I can imagine the stress is hard to manage when you have the additional burden of coverage on top of needing specialized care.