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@rosemarya

@katebw, I was already qualifued for medicare when i transplanted. I know that that does not help you at all. I hope that you will hear from other members soon. Is your transplant department able to provide any information? Or is anyone in the HR department where you work able to make suggestions?
I would like to tag @athenalee who is also a liver transplant to join this conversation. I know that she was also working and too young for medicare coverage.

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Replies to "@katebw, I was already qualifued for medicare when i transplanted. I know that that does not..."

@rosemarya first I have to express publicly how much I appreciate your kindness and thoughtfulness when we here express our worries. For the two plus years I’ve been involved here I am continually impressed by how you care. As for insurance my team which is MGH in Boston no longer has that council. The HR division of my agency is very helpful but my questions are so specific they cannot answer all of them. I’m looking for experiences about how people coped with health insurance with the need for ongoing medication and the unknowns out there with respect to scanning, other specialized care, etc. were you stressed at any point and how did you cope with that?