1. < Pancreatic Cancer

Tumour on pancreas 6cm, tumour markers 120,000: Need advice

Posted by shell from Canada @shelleyderish, Jun 10 10:57am

My husband had a mass on pancreas 1-1/2 yrs ago but we were told to leave it and monitor by mri. 9 months after last MRI mass in pancreas has grown to 6CM .Also spleen ,& spots on liver they say 99.9% cancer
Had a EUS biopsy 2 weeks ago. Came back not usable. Having a liver biopsy done this Friday. Finally convinced to do blood work 19/9 tumour markers are 120,000! We seem to be going in big circles. We have appointment with oncology at cancer clinic next week I have contacted myself a Hepato/Pancreato/ Biliary surgery group as we want to know if surgery is possible with chemo. The group is triaging his case Our GP did not want to refer but I insisted GP says treat with chemo and if we can’t get a biopsy pallitive Does this seem right?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

gamaryanne | @gamaryanne | Jun 17 1:37pm
In reply to @shelleyderish "My husband was diagnosed with mass on pancreas 1-1/2 yrs ago. We were told to leave..." + (show)
@shelleyderish

My husband was diagnosed with mass on pancreas 1-1/2 yrs ago. We were told to leave it and would monitor via mri ever 6 months Well here we are today! In past 6 months we are told never have seen your grow so fast. It’s 6CM It’s on spleen liver and they say probably many more places as tumour markers are so high.. has anyone experienced tumour markers 120,000?
Had EUS 2 weeks ago .biopsy came back unusable …. Sent for a liver biopsy yesterday with ultrasound they can see large areas that should be able to get biopsy from but they could not proceed
As we received wrong instruction about being off blood thinners we were instructed 48 hr and they want 5 days. Again they were sorry for the misinformation. Rebook for Tuesday
We contacted a HPB surgery clinic in Vancouver They Triaged his case and called yesterday that surgery was not an option as it has spread to so many places.
We have an appointment at the cancer clinic Thursday but no biopsy yet. We Seem to be going in circles He is still feeling fine . I Have bee doing research on treatments to prolong life to ask questions at that meeting
Is there any proactive suggestions on next steps ? Anyone has sucess with Keytruda .. CHRISPR or Parp inhibitor

Jump to this post

Yes it is frustrating. I have a reoccurrence to deal with now and am being offered two options. One will most likely be a quick fix and the other COULD be a long term fix.

REPLY
silver182 | @silver182 | Jun 18 8:49am

Get a good ERCP inspection & biopsy of ampulla and bile ducks, pancreas & liver. That info should be helpful, if not revealing.

REPLY
1 reply
shell from Canada | @shelleyderish | Jun 18 9:30am
In reply to @silver182 "Get a good ERCP inspection & biopsy of ampulla and bile ducks, pancreas & liver. That..." + (show)
@silver182

Get a good ERCP inspection & biopsy of ampulla and bile ducks, pancreas & liver. That info should be helpful, if not revealing.

Jump to this post

That biopsy was unsuccessful but they did have the inspection Today they are doing a biopsy on an area of the liver. Hope this one works

REPLY
silver182 | @silver182 | Jun 18 2:00pm

Sounds like they’re moving along as quickly as they can good for you Godspeed. Delays are the worst thing when it has to do with pancreatic cancer of any sort you need to move quickly.

REPLY
nancyjane1 | @nancyjane1 | Jun 19 7:54am
In reply to @mnewland99 "Nancyjane1 that’s such good news that you are doing so well especially with the generous lymph..." + (show)
@mnewland99

Nancyjane1 that’s such good news that you are doing so well especially with the generous lymph node involvement. You are lucky and two years gives me hope. Could you please share what facility you were treated at and what your tumor mutations are?

Jump to this post

Hi, Marie! I am in northwestern VA, not DC area, and have had ll my treatments and surgery in my local cancer center. We do work in connection with Johns Hopkins, 2 hours away. They reviewed everything and set up my first chemo. At least one of our oncologists spends one day a week working there. I have been there in person one time between surgery and chemo. Computer info does the trick, I guess, I am still on chemo break since April 30 and feel stronger and SO much happier! I am willing to continue only if they prove to me that it will benefit me.

REPLY
View MoreView Less
Please sign in or register to post a reply.