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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@mumma

Does anyone else have severe itching and tingling all over really bad at night
I have poly Vera and jak2 and am on hydroxy with monitored bloods

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Replies to "Does anyone else have severe itching and tingling all over really bad at night I have..."

Yes, unfortunately pruritus (itchy skin) is a common side effect. I have it as well and continuing to look for ways to lessen it. I get severe flair ups from contact with water, showering, even getting caught in the rain. Just started taking melatonin at night with 1/2 Benadryl which helps sleeping (recommended by nurse at hematologist). I also found regular application of Trader Joe’s coconut body butter helps. If anyone else has other suggestions I’m open to hearing as well.
Hope you find relief!

Yes, but I itch random times of the day. It’s really frustrating. I find antihistamines help but don’t stop it all. I haven’t found any creams that work. Like you, searching for an answer.