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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)

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@rosemarya

Annie, If this is your first appointment/meeting with the transplant team, it is possible that there is not a defined schedule.
When I had my initial appointment with my local transplant dept in KY, it was a long day that included labs, consults and meeting member of the team like social worker, nurse, dietician, and a transplant surgeon. The entire process was explained, and my husband and I had the opportunity to ask questions. It was a long day, but a very informative day. It was frightening and also comforting. We learned that there was a whole team of people who were experts with the medical knowledge who were there for us. We became part of a team that day!

However, if this is an appointment for the evaluation to determine eligibility for the transplant wait list, it involves several days of medical scans/tests. For this "evaluation" you will have several days of scheduled appointments. Many transplant patients call it a marathon. And if this is your situation, I suggest that you contact Mayo about schedule.

Have you signed up on the Mayo Clinic Patient Portal yet? You should be able to do that as soon as you receive your patient number. It is where you can access your Mayo information, including scheduling.

Annie, I transplanted at Mayo Rochester, and I know that you are going to be surrounded by the best of care at Mayo Phoenix!❤️

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Replies to "Annie, If this is your first appointment/meeting with the transplant team, it is possible that there..."

I appreciate you very much!! Thank you for all the information. I do have an account with Mayo Patient Portal.

I trust I will be in good hands, however, I’m nervous about the appointment.

It’s reassuring to know that you had a successful transplant!