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@bobweller

Oh I understand about the specialist experience. From my transplant experience, I learned to find the best doctor available. I was lucky finding my Heptologist years ago who had the reputation as the doctor's doctor. But, now I am worried

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Replies to "Oh I understand about the specialist experience. From my transplant experience, I learned to find the..."

There are excellent clinicians out there. See if you can find a support group in your area that can make recommendations if your current doctors cannot or not willing.
I was unable to see my first choice, but asking questions of people in the field was able to find a clinician I respect and appreciate. He’s very patient and answers all of my questions and he doesn’t know he says so, but he finds someone who does. I have some co-existing conditions that complicate my care sometimes. To have a doc who is willing to talk to other specialists is a big bonus.
I hope this goes smoothly for you. Let me know if you would. 🤞🏻