Brain Demyelinating diseases OTHER than MS

Have had progressive Brain Demyelination over course of 10 yrs with no definitive diagnosis even after vast testing and seeing specialists in NYC. During that time span, many disturbing issues have arisen such as serious ataxia, gait issues, 4th optic nerve palsy/diplopia and other optical issues, sensory impairment, etc., etc., etc....
I dropped the neurologist at the medical group that had been "attending" (so NOT!) to my increasing problems. Yes, related disorders/disease (Like Graves, Sjogren's Syndrome and others) had been tested, all negative. I chose an outstanding neurologist who took one look at the 10 yrs worth of Brain MRIs and immediately sent me to get brain, cervical and thoracic spine MRIs. His diagnosis: advanced MS, which at my age of 75 brings problems with what medications can be used. He wants me to have infusion therapy with Ocrevus but hesitant due to its side effects and how it can impact a patient my age. So he referred me to a neurologist specializing in MS. She examined MRIs and announced that in her experienced opinion it is NOT multiple sclerosis causing the lesion scarring. She patiently and fully explained by pointing out the very symmetrical formation of lesions, as opposed to the more scattered demyelination caused by MS. A thorough exam followed, and she recommended that I have genetic testing to see if there were links to what she was including as possible reasons for my many physical issues (also causing processing and emotional issues). We did concur on spinal tap as a means of seeing if oligoclonal bands were present, so I had the procedure. She also ordered several tests to be done on the CSF (and on blood work) for a slew of specific testing.
Thus far: Only 1 band in the CSF and still waiting on other results. Will be discussing genetics results when completed.

MEANWHILE, we had a Virtual Visit in which she presented (based on my medical history) the possibilities of the demyelination being caused by polyneuropathies and/or polyarthritic conditions. THAT blew my mind! My rheumatologist and she will be conferring on my issues with poymalgia rheumatica, osteoarthritis, Raynaud's, and extensive neuropathies not connected to definitive causes (no diabetes, for example).

I've done a great deal of researching on my own, because I was so blown away that it is possible that I do NOT have MS (and thus would not be served by the prescribed infusion drug), and that all that I've been dealing with could well be caused by "something else."
As she emphasized: If I were to go ahead with the diagnosis of MS and undergo Ocrevus (which she does not approve of anyway due to my age), it could mask what could well be another disorder. So I've chosen to follow her guidance, much to the disapproval of my primary neurologist who diagnosed MS....as I told him at our recent followup visit "You referred me to her, and I believe it's worthwhile investigating her possible sources for the lesions."

I created charts with possible disorders, listing the symptoms, etc for each. I am dumbfounded by how overlapping they are, and how you could easily say that my lesions and accompanying issues are relatable to them and even MS (but with distinctions for the neuropathic and polyarthritic disorders).

Needless to say, I am overwhelmed and overstressed (not a good thing because stress promotes more lesion development which equates to more "dead" brain areas and related consequences). I have other medical issues with which I've been coping/dealing, including Chronic Regional Pain Syndrome (which appears has now affected entire leg, not just ankle/foot). Too many other factors, way too many on my proverbial plate. But I am focusing on what I can still do and not allow dark depressive thoughts permeate. That won't help me, nor in turn help my husband.

So I ask: Anyone have personal experiences with ANYTHING that I've described/presented here?
Possibly with.....
• Genetic Leukoencephalopathy
• Chronic Inflammatory Demyelinating Polyneuropathy? (CIPD)
• Chronic inflammatory demyelination related to arthritic diseases?
• Any other ideas??

I am overwhelmed and overstressed, neither of which are good for what is happening within my brain. Very difficult to find distractions, to focus on mundane things. I am trying not to tax my brain because I am struggling with the fact that it continues being demyelinated while awaiting test results and having others scheduled. TIME is so precious.

I would be so appreciative of any info from members who have had similar situation/experiences.

Por favor, No suggestions of esoteric remedies.

Thank you for taking the time to read this rather long submission...