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@mjha

You have been a great help Lori. I can use all the resources and advice. I will research splenectomy options and alternatives as well as clinical trials.
Any help on how to obtain blood units for transfusion on regular basis would be great. Out of 3 units of blood he needs, we have managed to get only one so far. Information and advice about any programs that can help with the recurring blood need will be helpful as well if any of the forum members have any.
Thanks again.

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Replies to "You have been a great help Lori. I can use all the resources and advice. I..."

Hello @mjha, I’ve been thinking about your brother and wanted to check in with you to see how he is doing. Hopefully he’s been able to get the transfusions he’s so desperately needs. Have his doctors been able to come up with a treatment option for him?