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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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I have had SFN for 15 years and been looking for relief everywhere. The best I’ve found for pain is LDN ~Low Dose naltrexone but I have found absolutely nothing for numbness & presently I am at the end of my rope.
A friend just suggested looking into Hyperbaric Oxygen Therapy for Chronic Neuropathic Pain.
I just found this ~ Hyperbaric Oxygen Therapy (HBOT) is an effective treatment for neuropathy. By driving oxygen deep into tissues, it reduces cell death and pain symptoms. Hyperbaric oxygen also stimulates the growth of new blood vessels, enabling the body to increase effective oxygen and nutrient delivery.
Has anyone had experience with this? Please let me know.
Thanks.
BTS
Is Pirenzepine approved in the USA. Has anyone tried it and what were the results. I’ve read quite a lot about it and it seems to be the first medication that offers a cure.
This supplement has ingredients that supposedly help regenerate damaged nerves and include folic acid, alpha lipoic acid, lions mane mushroom, vit B6 &B12, Benfotiamine, etc.? And if so has it done some good?
I tried the nooro foot massager and the first one really helped my foot until it quit working so I reached out to the company with no response and then one day out of the blue another foot massager came in the mail and that one only worked for about 2 hours, and I’ve had no response from the company whatsoever even after contacting them several times with pictures.
My understanding is no. See: https://connect.mayoclinic.org/discussion/stage-2-trials-of-pirenzepine-for-neuropathy/
This is also the reason that Stage 3 trials are on hold as it became to expensive to have to get the drug OK'ed vs. just getting the use for peripheral neuropathy approved.
I take gabapentin and it doesn’t help anymore.
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1 ReactionI too am interested in finding out more about this for my mother.
What did it do, I take it, it like drinking a glass of water, doesn't relieve pain, so what's the purpose.
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1 ReactionHi bambacotton1: I don't know what gabapentin does for you; for me it improves the quality of my sleep several fold. I sleep peacefully and deeply when I take it, when I don't take it (understanding that I taper off of it) my sleep is poor, interrupted, and I wake up early and can't get back to sleep. Without adequate restful sleep my days are pretty shot; it is hard to get anything done because I'm wanting more sleep. I can't concentrate, I have trouble planning and carrying out much of anything. My kids would tell me that I' m not good at "adulting."
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1 ReactionI took them for 45 days,I really thought that this is what I was waiting for but instead of getting better 40 days in my pn was at the worst level ever. I stopped taking the supplement and my pain level was back to what it was before I started. That may not be the case for everyone. I am now looking into the scrambler ST-5A device and Axon therapy. When your a shark out of water your looking for a good place to land. I have tried a lot of supplements and I am still looking for the right place to land. The scrambler and axon look very promising to finally find something to cancel all that pain to the brain.
I hope you find some relief for your mom.