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Is my treatment a bit aggressive?

Blood Cancers & Disorders | Last Active: Jun 15 5:05pm | Replies (19)

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@jackiecarey

Hello,
You mention you have PV. I have an MPN specifically PV and on hydrox..which if able to tolerate it, it's the mainstay drug of choice. I started out with hydrox with phlebotomies twice to get my numbers down. They are down which I'm grateful for and haven't needed a phlebotomy for over a year which is good news, I'm within normal limits with hydrox and baby asa. If your numbers are good, without symptoms from hydrox, able to perform all the exercise you love with excellent energy levels consider yourself lucky. That's not to say your hydrox prescription is optimal, the best thing is to have a discussion with your hematologist regarding the dose and blood levels. You are the first person that has not complained about fatigue but instead your energy levels are excellent...I would give anything to say that's my situation. Good luck and partner up with your hematologist, ask relevant questions and expect relevant answers ..If you don't feel comfortable with the answers with appropriate rationale then it's time for a new hematologist.

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Replies to "Hello, You mention you have PV. I have an MPN specifically PV and on hydrox..which if..."

Thanks, no PV, ET, I do have some fatigue. I consider myself fortunate. Just want to Keep it that way! Thanks for your advice