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CLL - newly diagnosed

Blood Cancers & Disorders | Last Active: Aug 2 11:42am | Replies (117)

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@stuartg

I am still taking the EGCG, but 2 or 3 years ago increased the dose to 3 x 600mg capsules morning and night after reading somewhere that the dose I was taking wasn't the recommended dose.

My lymphocytes bounced around each quarterly blood test but went down more than up.

Last test in April the lymphocytes were down to about 9.5.

Unfortunately the fatigue is getting worse despite the lymphocytes going down. Maybe something else is causing it?

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Replies to "I am still taking the EGCG, but 2 or 3 years ago increased the dose to..."

Wow, I'm so glad to hear from you so soon with your latest news. Thank you!

The lymphocyte count dropping to 9.5 is a very good sign. If you're getting plenty of rest every day but still feel increasingly tired, that could be a concern, as one of the symptoms of CLL is causing physical fatigue.

I've been through something similar. In my most recent test, there was a noticeable increase in my lymphocytes, which worries me. At the same time, I'm taking EGCG capsules (NOW、 Life Extension), taking 3*200mg of EGCG daily. I'd like to hear your advice—am I taking too small a dose?

I find that when my immunoglobulin falls, I get very fatigued. I tend to get an IgG infusion whenever my count is below 400. That is usually a few time per year for me.