Connect
← Return to Does anyone else have MGUS?
Discussion
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)
Comment receiving replies
Hello:
I also have had MGUS for several years, and had a full work up initially to get a baseline, and to make sure nothing concerning was going on. The PET scan is to see if there are lesions in your bones, which would be important to know. All being thorough, which is a +.
To clarify- do you mean you have 10% monoclonal plasma cells in your bone marrow?
What is the amount of the monoclonal protein spike ? It’s usually in grams/dl.
There are several tests that will be followed and the doctor should review everything for you.
Replies to "Hello: I also have had MGUS for several years, and had a full work up initially..."
Connect
No pet scan but yearly I get a skeletal survey to check my bones for tumors
Besides that, in the past my lumbar puncture showed that I had 4x the amount of protein in my spinal fluid, and I also always have abnormal C Reactive protein in my blood.
Asked the Neuro doc what that meant and he said it means you’re sick but you don’t appear to be
Can not get straight answer from any of the several neurologists that I’ve been to the past 10 yrs.
Very frustrating