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@joannoxenham

So I can make an evaluation appt with a doctor at Mayo on my own? I didn’t know if I needed to be referred. My cardiologist has no experience with hocm as I’m in a small town in East Tennessee. He just more or less goes on what I tell him but I don’t know what he should be testing for and looking for as far as hf goes. I appreciate the feedback.

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Replies to "So I can make an evaluation appt with a doctor at Mayo on my own? I..."

It never hurts to call and ask about making your own appointment, you may even be able to contact them online "Contact Us" on the website. It would not hurt for your cardiologist to call them directly, I would think they would be extra willing to talk to another cardiologist and come up with a plan of action designed for you. Here is how it worked for me, others may have different stories: My cardiologist sent all of my test results to Mayo (EKG, echo, bloodwork....), for evaluation. I did not have to actually go there until a couple of days before surgery (that was the plan of action set up for me), and I did not have to return for any follow-ups, all was taken care of at home.

Definitely recommend a HCM center of excellence. Regular community cardiologist are just not trained in the details of this. Dr Ommen at Mayo is excellent