60+ UTI’s, 4 Urologists, no answers in 3 years

Posted by bellasara24 @bellasara24, Jun 14 8:02am

I am a 47 year old, female, who has had 65 catheter sample, cultured out UTI’s. They cannot find any medical reason why they keep coming back. We have tried everything under the sun to get them to stop… and every conservative method to find out a possible why. No answers. I had a port put in last year, because the infections started coming quicker, and oral antibiotic treatment wasn’t giving me enough time between infections.

I have constant pain, bladder, flank, and when I get a UTI, the pain increases with the added traditional UTI symptoms. The bacteria keeps changing, it is not always the same. I have a Cystoscopy with a Doctor at UW Madison in July.
He is my 5th Urologist. This will be my 4th time having this procedure done.

Anyone else?

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Rubyslippers | @triciaot | Jun 14 9:28am

Although I don’t think diet is going to cure your UTIs you might want to look at information on AGEs, advanced glycogen end products. There are some foods that promote AGEs in the body.

“Bacteria colonize on cell surfaces predominantly by binding to the carbohydrates, therefore changes in the cell surface carbohydrates due to AGE accumulation might alter susceptibility to infections.”
https://www.auajournals.org/doi/10.1016/j.juro.2013.02.788
A pretty good book on the topic is, The A.G.E. Food Guide, although you can find a lot of info on the web about this topic without buying a book. The library might have it, or something similar.
https://books.google.com/books/about/The_A_G_E_Food_Guide.html?id=8G3MjgEACAAJ
I can’t imagine taking antibiotics over and over. It just kills some gut bacteria allowing overgrowth of other bacteria. I believe this can affect the bacterial balance of the bladder, urethra - and vagina (which harbors bacteria that can creep up the urethra). Kind of a Catch 22.

Wishing you the best and hoping they find a solution for you!