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Anyone have MGUS and being treated for osteoporosis?

Blood Cancers & Disorders | Last Active: Jun 20 3:04pm | Replies (51)
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@bobweller

I had my second liver transplant in 2017, my first was in 2000. Since 2018 I have had painful and numb/tinging feet and went to a Neurologist at my transplant hospital center. They called it SFN. Recently I changed Neurologist and they tested Alpha and Lamda lightcell levels. My Alpha was above normal range but my Lamda was within normal range. Also tested protein M was negitive. I read this is MGUS and an indicator of possible blood cancer because of plasma cell problem.

I am new to this and now worried of getting some sort of blood cancer after 24 years of dealing with organ transplants. I recall a bone marrow test before they diagnosed me with the failing liver in early 2000. But it was negitive. I remember how it hurt taking the biopsy of the marrow through my hip bone.

What can I do now? Scared!

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Replies to "I had my second liver transplant in 2017, my first was in 2000. Since 2018 I..."
Patty, Volunteer Mentor | @pmm | Jun 15 8:40am

@bobweller
There is so much information on the web that a deep dive is certainly a bit scary. There are lots of variables, however.
The best resource to answer your questions is a hematologist/oncologist.
High light chain levels may or may not indicate a plasma disorder. They will want to explore further.
Although many of us with MGUS experience some neuropathy, many are symptom free. Many have had MGUS for many years and have not progressed to multiple myeloma.
I’m sure that our members with MGUS find your anxiety about a possible MGUS diagnosis totally relatable.
Have you been referred to a blood specialist?

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