Replies to Thank you for your story. They are all so helpful. My side effects include: T12 fracture,…

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Osteoporosis & Bone Health | Last Active: Jun 19 9:49am | Replies (47)

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@neverretire

Thank you for your story. They are all so helpful. My side effects include: T12 fracture, high blood pressure, tooth pain, mouth ulcers, severe pain in my spine, UTIs, mild headaches, severe itching arms, back and chest, some constipation.
Trying to get into an endocrinologist to get off Prolia. How many of us started Prolia without any information from the prescribing doctor or the hospital/pharmacy administering the drug? I sure didn’t and if I knew what I know now I would not have joined this fight. There has to be a better way to build bone. I’m very curious to see the results of my bone scan next month.

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Replies to "Thank you for your story. They are all so helpful. My side effects include: T12 fracture,..."

beanieone | @beanieone | Jun 18 8:14am

The input I’ve received here about Prolia trumps the info I did NOT get from my rheumatologist; he just said, “After you’re finished with your (13th dose?? of) Evenity, you’ll start Prolia.”

Not going to do that! Reclast was my stabilizer drug for some years previously and, provided I have not exceeded my lifetime infusion limit, it’ll likely be my future stabilizer.

Thanks to all who have published on this forum - the info may have saved me from a lifetime of Prolia use. I had serious, lasting, side effects from Tymlos - who can say that I wouldn’t have the same or even worse from Prolia after a few injections and not be able to discontinue it. What then, peeps?