@susanfalcon52 second day out (infusion was Wed.), woke with fever 99.5 (my usual is 97.5) and achey but headache better and tinnitus, I think, is going down a bit. I am not concerned as this kind of reaction is common (though with 20% dose and IV hydration I thought I might escape).

I have read that second infusion isn't as bad. I have read the above posts about long lasting effects and am sorry to hear about them. I won't worry until I have to!

My kind doctor checked in on me yesterday. Funny, that made me feel safer.

@jeanniejacobs I assume that Reclast is the cause of your issues. Was it your first osteoporosis medication? I cannot do any weight lifting but walk a lot. I hope you improve. I did well with Tymlos despite my sensitivities and health issues, and we'll see how I do with low dose Reclast. Those of us who need to "lock in" gains and prevent rebound bone loss have no choice really. We are between a rock and a hard place.

For low dose more frequently I will have to see if Medicare will authorize another infusion. The nurse told me this can be a problem. They see people doing 2mg or 3mg but it is unusual to do 1mg. Full dose is 5mg. My doctor will have to explain my sensitivities, kidney issues and afib.