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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@jackiecarey

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There are medications to help with the symptoms and slow the disease and clients who have it can live many years under the care of a hematologist...I also understand and experienced that general practitioners are not aware these cancers exist and don't pick up on the diease..even after a TIA or clotting incident. I wish things were different but the reality is as I said. So your question on prevention, there isn't one since they don't know the cause that causes the Jak2 mutation switch to get stuck on the on position. For now, if your lucky enough to get it diagnosed is get under the care of a specialist and treat the symptoms., slow the disease and crave out the best life as I promise you even though we're living with the symptoms everyday it could be much, much worse....Accepting the realities is a first step....

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Replies to "It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There..."

I have pv and when first diagnosed was oh HU every day developed anemia and was taken off and put on iron . now take HU 3x week with baby asprin and count is in control. Pv is a rare blood cancer was told no cure just take meds . You can live for a long time with this just enjoy your life.