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Anyone been diagnosed with CDA type 2 anemia or know someone who is?

Blood Cancers & Disorders | Last Active: Jun 16 12:42am | Replies (8)
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@loribmt

Oh, you’re poor brother. Having a hemoglobin that low is debilitating! I’m so sorry there’s such a challenge finding the right blood type so he can get transfusions.

Unfortunately those of us in the forum aren’t medical professionals so we’re not able to diagnose and offer treatments. I have no personal experience with this type of anemia. But I’m familiar with the side effects of anemia, splenic involvement, transfusions, with an aggressive form of leukemia. I will be thinking of your brother and wishing only the best for him.

Would your brother have access to a larger teaching hospital or university? They sometimes have a much deeper bench of medical specialists who will be able to assess your brother and offer treatments for him.

Since CDA type 2 anemia is hereditary is anyone else in your family being tested or showing symptoms?

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Replies to "Oh, you’re poor brother. Having a hemoglobin that low is debilitating! I’m so sorry there’s such..."
mjha | @mjha | Jun 13 11:47pm

Hi Lori, Thank you for your kind words. I would welcome any input from the forum members on treatments that might have worked in similar situations. For example, treatment for splenomegaly which might have worked well for someone, just looking to learn from their experience.
He got his diagnosis and treatment recommendations from one of the largest teaching hospitals there, however it is not close and extremely crowded. Going back there is part of our plan once he is ok to travel.
So far no one else in the family is exhibiting the symptoms. Thanks again.

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