Fibromyalgia - Does anything help relieve severe pain during flares?

Posted by ripley @ripley, Mar 7 11:16am

I was officially diagnosed with Fibro two years ago. I don't take any medications except for 5mg Flexeril (muscle relaxer) at night during flares, and some supplements recommended by my functional medicine Nurse Practitioner that don't seem to be helping. A hot bath before bed helps a little.
I'm now in the middle of a flare and in extreme pain all day. I try to stay busy to take my mind off it, but it's very hard to cope.
I'm very reluctant to go on meds such as Cymbalta, Lyrica or Gabapentin. I've read they often don't help and have bad withdrawal issues if you want to stop taking them. Most doctors don't offer much help except for offering drugs, with little knowledge about their effectiveness and side effects.
I'm looking for support or help with how to continue living with this. What works for others with Fibro to lessen the pain?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@farmgrrl57

I've tried infrared therapy and got little to no relief. It may work great for some people, it just didn't work for me. I have the opposite problem with drugs. I have to take twice what normal people take. My father was very resistant also. I've had FM for 38 years and still battle it everyday. I've tried all the usual drugs with varying degrees of unsuccessful. I waned myself off gabapentin, only to realize that it was indeed helping and went back on it. I do have a few side effects, but it's better than constant pain. I have been denied by 3 different pain clinics, ironically. Because I insisted once that I wasn't in pain. I'm hoping I will be accepted to a study near me., using a neurological stimulator. Never just give up! Keep advocating for yourself.

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How much Gabapentin do you take and how often? Does it help with the pain? I'm afraid to try it because I read your body builds up a tolerance and you need to constantly increase the dose. Also, worried about side effects and withdrawal issues if it doesn't help or stops helping. Thank you.

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I have fibromyalgia and PMR and just started taking this product. It’s helped tremendously in just a few days. You can buy it on Amazon. It’s tumeric and black pepper which helps you absorb the tumeric. Hope it helps!

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@daenika87

I have fibromyalgia and PMR and just started taking this product. It’s helped tremendously in just a few days. You can buy it on Amazon. It’s tumeric and black pepper which helps you absorb the tumeric. Hope it helps!

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How did you hear about this product? Does it help relieve pain? My functional medicine NP told me to take a product that has PEA and Meriva Curcumin. I started taking it a few days ago and haven't noticed any benefit yet. Two capsules has 500mg but she told me to work up to four capsules a day. The PEA is supposed to help with pain and nerves. Thank you.

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@ripley

How did you hear about this product? Does it help relieve pain? My functional medicine NP told me to take a product that has PEA and Meriva Curcumin. I started taking it a few days ago and haven't noticed any benefit yet. Two capsules has 500mg but she told me to work up to four capsules a day. The PEA is supposed to help with pain and nerves. Thank you.

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It has greatly reduced my pain. I’ve known that turmeric is really good for pain in muscles and joints. I like this product because it’s a spray and starts to be absorbed in the mucous membranes of you’re mouth.

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@ripley

How did you hear about this product? Does it help relieve pain? My functional medicine NP told me to take a product that has PEA and Meriva Curcumin. I started taking it a few days ago and haven't noticed any benefit yet. Two capsules has 500mg but she told me to work up to four capsules a day. The PEA is supposed to help with pain and nerves. Thank you.

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This product started helping in just two days.

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@ripley

How much Gabapentin do you take and how often? Does it help with the pain? I'm afraid to try it because I read your body builds up a tolerance and you need to constantly increase the dose. Also, worried about side effects and withdrawal issues if it doesn't help or stops helping. Thank you.

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My dr..has slowly increased gabapentin to 300 mg. in the morning and afternoon and 900mg at bedtime. I think I'm going to have to move up again. Your body does get used to it and periodically it needs increased. At least in my experience. The only side effect I've had is once I go over 1500 mg. a day, I start have uncontrollable twitches in my hands. You do need to wean off, but it's not too bad.

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@ripley

How much Gabapentin do you take and how often? Does it help reduce pain? I read your body can build a tolerance and the dose needs to be constantly increased. Has this happened to you? I'm afraid to try it due to side effects I've read about and that it's addictive. Thank you!

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To my knowledge Gabapentin is not addictive but I could be incorrect about that. I've been taking it several years and no feeling of addiction ever occurred with me. I take 600 mg 3x day and only problem I've had is some memory confusion which was actually a relief to discover the Gabapentin caused it and it's not from beginning of dementia. And for me it is effective is reducing pain. My dosage has been adjusted up and down periodically as I need it.

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I increased my cymbalta from 30mg to 90 mgs during my latest flare (which is my worst for 13 years). It certainly helps with anxiety and it does dampen down the nerve pain though it doesn’t get rid of it as such.

Previously I’d been largely in remission for 18 months with very few symptoms I’d relate to fibro.

How long have you been in your flare? Is the pain reducing at all?

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@dtraci

Hello... I've been researching Infrared therapy for Fibromyalgia pain, immune support, better sleep and other ailments. Has anyone tried this type of therapy?? I'd love to hear everyone's thoughts about it.

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That’s what Lady Gaga uses I believe

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@dtraci

Hello... I've been researching Infrared therapy for Fibromyalgia pain, immune support, better sleep and other ailments. Has anyone tried this type of therapy?? I'd love to hear everyone's thoughts about it.

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I started going to an infrared sauna 4-5x/week 6 months ago. I am a huge proponent of infrared therapy! There are some days that I hobble into the sauna and am able to walk like a normal person after a 40 min session. I don’t know much about the long-term benefits, but for 12-24 hours, my pain reduces significantly! It also improves my sleep and is like a little spa session, so it helps reduce my stress too. Whenever I can, I try to work my schedule around a sauna session because I feel that much better after!

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