Fatigue after radiation

Posted by sue417 @sue417, Apr 3 4:31pm

Hi
Just wondering people's effects after radiation for breast cancer and how long fatigue lasts I just finished 20 sessions and I can't even begin to say how exhausted I am just trying to do normal things.

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@pattier

I had 16 radiation treatments and 4 boosters. I'm at 4 weeks after treatment and still have fatigue. It's not horrible and I'm dealing with it. My oncologist said it can sometimes take months to go away. I also had total knee replacement surgery a couple of months before the DCIS diagnosis, biopsy and 3 lumpectomies so my body has a lot of healing to do. I think my biggest issue is that I feel guilty for not doing the things I normally would be doing this time of year but I just can't muster up the energy to do them. Such as planting flowers and a garden. I look at all of it as just overwhelming - so I've decided to not do them this year. I'm 72 so that might be a part of it as well. It's frustrating but I'm glad to be alive and that this was caught early.

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Hi
Wow that's alot for sure the knee surgery is massive in itself. All you can do is listen to your body and not beat yourself up about doing things that you can't right now. Hugs

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@pattier

I had 16 radiation treatments and 4 boosters. I'm at 4 weeks after treatment and still have fatigue. It's not horrible and I'm dealing with it. My oncologist said it can sometimes take months to go away. I also had total knee replacement surgery a couple of months before the DCIS diagnosis, biopsy and 3 lumpectomies so my body has a lot of healing to do. I think my biggest issue is that I feel guilty for not doing the things I normally would be doing this time of year but I just can't muster up the energy to do them. Such as planting flowers and a garden. I look at all of it as just overwhelming - so I've decided to not do them this year. I'm 72 so that might be a part of it as well. It's frustrating but I'm glad to be alive and that this was caught early.

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I haven’t started radiation yet but am reading about others experiences as the plan is also for me to have 16 plus 4 boosts. However I still can’t get clean margins! I go in July 19th for my third re-excision. I must say this has had me questioning whether I should have requested mastectomy. You also had 3 surgeries?

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@meg55

I haven’t started radiation yet but am reading about others experiences as the plan is also for me to have 16 plus 4 boosts. However I still can’t get clean margins! I go in July 19th for my third re-excision. I must say this has had me questioning whether I should have requested mastectomy. You also had 3 surgeries?

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Yes, I had 3. It was frustrating. Thankfully the physical recovery from them was pretty easy but the mental anguish was hard. I wondered as well if I should have requested mastectomy but after discussions with my surgeon, the medical oncologist and then the radiology oncologist I felt reassured that for my diagnosis this was the best path and now I'm happy I went with that. Good luck with this hopefully last surgery!!!

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@meg55

I haven’t started radiation yet but am reading about others experiences as the plan is also for me to have 16 plus 4 boosts. However I still can’t get clean margins! I go in July 19th for my third re-excision. I must say this has had me questioning whether I should have requested mastectomy. You also had 3 surgeries?

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Dear meg55,
I had two lumpectomies, and am now cleared to start radiation therapy in a few days. The plan for me is the same as yours: 16 plus 4 boosts. It was frustrating to learn after the first lumpectomy that they didn't get clear margins and I had to have a second one. I am really sorry that you had to have three! I also wondered if I just shouldn't have gotten a mastectomy, but even at two (or three?) lumpectomies, they are much less invasive than a mastectomy, and still leave plenty of tissue so that breast reconstruction surgery is not necessary. I understand that with a mastectomy the skin on your chest is usually permanently numb, plus no nipple. Still having an active sex life, these are important considerations for me. As one of my doctors reminded me, if it becomes necessary in the future, I can still get a mastectomy, but once the breast is gone, it's gone. So I think it is worth a try to see if lumpectomy plus radiation does the trick. Statistically, the survival rate is the same (in my case, better than 99%). Hope this helps.

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@pattier

Yes, I had 3. It was frustrating. Thankfully the physical recovery from them was pretty easy but the mental anguish was hard. I wondered as well if I should have requested mastectomy but after discussions with my surgeon, the medical oncologist and then the radiology oncologist I felt reassured that for my diagnosis this was the best path and now I'm happy I went with that. Good luck with this hopefully last surgery!!!

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Thank you for your perspective! 🩷

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@dlst

Dear meg55,
I had two lumpectomies, and am now cleared to start radiation therapy in a few days. The plan for me is the same as yours: 16 plus 4 boosts. It was frustrating to learn after the first lumpectomy that they didn't get clear margins and I had to have a second one. I am really sorry that you had to have three! I also wondered if I just shouldn't have gotten a mastectomy, but even at two (or three?) lumpectomies, they are much less invasive than a mastectomy, and still leave plenty of tissue so that breast reconstruction surgery is not necessary. I understand that with a mastectomy the skin on your chest is usually permanently numb, plus no nipple. Still having an active sex life, these are important considerations for me. As one of my doctors reminded me, if it becomes necessary in the future, I can still get a mastectomy, but once the breast is gone, it's gone. So I think it is worth a try to see if lumpectomy plus radiation does the trick. Statistically, the survival rate is the same (in my case, better than 99%). Hope this helps.

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Yes, for me too and the radiation does seem key to prevent recurrence. Thank you for your input ! Fingers crossed third time’s the charm!

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It was a good 6 months before I was less than completely exhausted. It took another 6 months to get back to feeling like myself. (I had a lumpectomy and radiation. I chose not to do aromatase inhibitors.)

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@susanmclendon

It was a good 6 months before I was less than completely exhausted. It took another 6 months to get back to feeling like myself. (I had a lumpectomy and radiation. I chose not to do aromatase inhibitors.)

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Hi
Thank you for sharing that. I also had an lumpectomy and am not doing tge aromatase inhibitors. When you say it took a yr to feel like yourself can you elaborate. I don't feel like me either is it the whole experience and the fatigue my brain feels foggy it's strange

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Hi
Er pr + her 2 - stage 0
I finished.
Radiation, April 2nd this yr, my fatigue hit at the end of April.This is four months since radiation. I started to feel a bit better but now I am leveled again. I have had alot of deaths in the last 5 mths 4 actually. Plus caring for a mom with my sister with alzhiemers. She finally got placed this week. I don't know if it's all the stress as i have not been able to rest properly since coming back home after radiation . Or if this is the norm. Still waiting to see my endocrinologist.Because also I was taken off a hrt after 14yrs and having alot of menopause systems anxiety, hot flashes, mood swings. I just want my life back to what it was before radiation. Am I unrealistic to think?I should be feeling better. Plus have fibromyalgia

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@sue417

Hi
Er pr + her 2 - stage 0
I finished.
Radiation, April 2nd this yr, my fatigue hit at the end of April.This is four months since radiation. I started to feel a bit better but now I am leveled again. I have had alot of deaths in the last 5 mths 4 actually. Plus caring for a mom with my sister with alzhiemers. She finally got placed this week. I don't know if it's all the stress as i have not been able to rest properly since coming back home after radiation . Or if this is the norm. Still waiting to see my endocrinologist.Because also I was taken off a hrt after 14yrs and having alot of menopause systems anxiety, hot flashes, mood swings. I just want my life back to what it was before radiation. Am I unrealistic to think?I should be feeling better. Plus have fibromyalgia

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I think it can take a while, especially given all of the other stressors in your life. Without going into detail, I had a lot of stress in my life before during and after radiation as well. My cancer was similar to yours, but I was stage 1A. I would say it took me at least a good 7 to 8 months before I was back to my old self. Recovery will be different for everybody - there are those who snap right back and others, like us, who need more time. Go easy on yourself. Listen to your body. It’s essential to take the time to rest when you need it, even if it’s just a 20-30 minute nap. Put yourself first if you can, and be patient with yourself — you’ll eventually get to where you want to be. Sending you strength! Good luck!

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