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Hemoptysis - wonder what others do

MAC & Bronchiectasis | Last Active: Dec 7 9:47am | Replies (41)

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@sueinmn

@karen10225 This stupid disease throws nasty curve balls at us all the time, and certainly unexpected bleeding is near the top of the list! It is really scary the first time it happens, just like the first time you cough so hard you can't catch your breath and maybe are even "seeing stars."
I see that a lot of people here have shared their own stories about hemoptysis, and how they have learned to deal with it.
What I wish I had done back at the time of my diagnosis was to talk to a therapist about ALL of my fears surrounding MAC & Bronchiectasis - I'm pretty sure I would have managed better. As it was, I had a very compassionate long-time primary caregiver who cleared her calendar more than once to counsel me - and she finally put me in touch with a therapist who handles pain management and chronic illness. She has helped me get to a good place, and now I just touch base with her a few times a year.
Do you have someone you can talk to?

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Replies to "@karen10225 This stupid disease throws nasty curve balls at us all the time, and certainly unexpected..."

I don’t, but need to find someone who specializes in chronic illnesses before I go completely crazy. I try so hard not to be scared, but I can’t seem to control my fear and it has completely taken over my life. Problem here is that it’s hard to find someone. Even my psychiatrist who prescribes my anxiety meds doesn’t know anyone to recommend.

Sue,
I have started using 7 percent saline instead of three, but now I have bloody mucus more often so I am going to use three again. Is it likely that the seven percent is causing the extra bloody mucus because it is so harsh and I cough so much more using it? It scares me every time no matter how hard I try to accept it as part of this disease! Do others have this problem with the seven percent?
Help!