Welcome to Connect, @mjha. I’ve looked through our member discussions for any reference to this hereditary type of anemia. At this time I wasn’t successful but when a disease is rare it can type a little while for people to see it and respond.

However I as able to find a fair amount of information on Congenital dyserythropoietic anemia type 2 (CDA II) with descriptions of the hereditary aspect of the disease, symptoms and potential treatments based on the severity of the condition. Symptoms may appear as early as childhood.

According to the Boston Children’s Hospital, treatments can include:
>blood transfusions and apheresis.
>medications, such as iron chelating agents or interferon alpha-2A (only in CDA type I)
>selected surgical procedures (removal of the spleen and/or gallbladder), when required
>stem cell transplant — the only definitive cure, available to patients with very severe CDA

Here are several sites for you to read through to gather a little more knowledge of this type of anemia.
~From the National Institute of Health-Genetic and Rare Disease Center: https://rarediseases.info.nih.gov/diseases/2001/congenital-dyserythropoietic-anemia-type-ii

~From Ash Publications: https://ashpublications.org/blood/article/136/11/1274/461553/Congenital-dyserythropoietic-anemias

From Boston Children’s Hospital: https://www.childrenshospital.org/conditions/congenital-dyserythropoietic-anemia

Is this a new diagnosis for you or a family member? What has been discussed with your doctor?