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Husband diagnosed MCI: He is in denial and personality is changing

Caregivers: Dementia | Last Active: Jun 18 1:36pm | Replies (122)
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@jehjeh

I understand about the emotional roller-coaster. One moment my husband loves me with all his heart, the next, our marriage is over, he knows I have a boyfriend, I'm spending all his money... last night, for the first time I laid in the dark and cried.

It's been at least 6 years, 24/7, and I'm looking for someone to come in twice a week so I can go for a walk, shop, see friends or just drive somewhere and sleep in my car, uninterrupted for a couple of hours.

Doctors can't help much because it's been difficult to get him there. (He also suffers from chronic pain)

Sorry for the long post, just needed to reach out this morning.

I appreciate all your wisdom here.

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Replies to "I understand about the emotional roller-coaster. One moment my husband loves me with all his heart,..."
maryvc | @maryvc | Jun 12 12:05pm

I’m so glad you reached out. We are not alone but sometimes it feels that way. And then we want to be alone to rest, recoup. Funny about sleep in your car.
I am working on finding my own retreat air BnB by a lake where I can write and breathe, sip my wine and remember that life goes on.
ThankYOU for your reply.

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jmg60 | @jmg60 | Jun 13 9:48am

I am sorry you are (both) experiencing this emotional and physical challenge. I cannot encourage you enough for find caregivers to provide you with that alone time to regenerate your mind and body. You can't keep it up, I was doing this 24/7 until about 6 weeks ago. It's life changing. And as my husbands needs increase, so will the caregiver hours. I don't know if it's that American pioneer rugged individualist pride, or what...we don't ask for help nearly often, or soon enough! You deserve a life, and if you don't get some help YOUR health will be at stake, there is plenty of evidence for that. So find the caregiver(s) and don't be shy - 4 to 5 hours a couple of days at least! Put on your oxygen mask before helping others! Best wishes.

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